The CoC Source - May 31, 2011
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2009 FIPS Level II Data: There’s Still Time to Release!
Thank you to the Commission on Cancer (CoC)-accredited facilities that have already reviewed and released their 2009 FIPS Level II data to the CoC Hospital Locator!
The site and stage distribution data table of 2009 cancer cases (Level II report) has been posted since April 15 in the Facility Information Profile System (FIPS) for access by CoC-accredited cancer programs . The deadline to review the 2009 FIPS Level II data table and submit corrections to the National Cancer Data Base (NCDB) was May 31.
While the corrections deadline for the NCDB has passed, CoC-accredited cancer programs can still release the 2009 FIPS Level II data to the public.
The CoC encourages cancer program staff to discuss these data at the next cancer committee meeting and take action to release the data to the public via the CoC Find an Accredited Cancer Program Near You Locator.
To review and release Level II Data:
• Enter FIPS through CoC Datalinks at https://datalinks.facs.org/
• Click on the link titled “Level II: Cases Reported to the NCDB by Site and Stage.”
• Review the data table for accuracy.
• Secure permission from the cancer committee to release these data.
• Indicate your facility’s decision by choosing one of the following:
Accurate Release to CoC
Accurate Do Not Release to CoC
Inaccurate Do Not Release to CoC
Corrections made by programs to their data since the release of the initial 2009 FIPS Level II data table in April, are being incorporated into updated tables by the NCDB. Staff at CoC-accredited facilities will receive an e-mail notification with instructions for releasing this updated table when it is available.
The CoC asks that you review and release your Level II data at your next Cancer Committee Meeting.
Questions? Contact CoC@facs.org
CoC to Exhibit at the ACOA
The CoC will host an exhibit at the American College of Oncology Administrators 2011 Oncology Update, June 22-24, at the American College of Surgeons Conference Center, 633 North Saint Clair Street, Chicago, IL. If you attend this meeting, stop by the CoC booth and view the new CoC materials. To learn more about the CoC, visit http://www.facs.org/cancer/index.html.
CoC Meetings Planned in October
CoC members and State Chairs should SAVE-THE-DATES of October 23-24, 2011 for the CoC meetings which will be held in conjunction with the American College of Surgeons Clinical Congress. This year's meeting will be held in San Francisco and the CoC meetings take place at the San Francisco Hilton and Towers Hotel. Invitations, with the complete meeting schedule, will be disseminated in July. If you have questions, please contact Andréa Scrementi at firstname.lastname@example.org.
News from the CAnswer Forum - In It To Win It! – April & May Winners
In it to Win it! – April Grand Prize Winner
Congratulations – Peggy Kuhn from Teaneck, NJ
In April, we recognized National Cancer Registrars Week by holding a special ‘In it to Win it’ raffle. One winner was selected to receive a free registration (a $600 value), for the Survey Savvy-World Premier of the 2012 Patient Centered Standards, in Hollywood, CA, September 15 -16, 2011. The winner, Peggy Kuhn, from Teaneck, NJ, was announced at the National Cancer Registrars Association meeting in Orlando, FL. The CoC staff congratulate Ms. Kuhn on her win and look forward to meeting her at our upcoming educational program in September.
In it to Win it! – May Winners
Congratulations – Carolyn Ingram and Joan Barr
The Commission on Cancer (CoC) appreciates the constituents who have shared their knowledge and expertise by answering questions in the CAnswer Forum. Congratulations to the May contest winners – Carolyn Ingram from Precyse Solutions, and Joan Barr from DuBois, PA. Carolyn and Joan have their choice of either a free CoC Webinar for 2011, or an American Joint Committee on Cancer (AJCC) Cancer Staging Manual, 7th Edition, autographed by the editors.
We will continue to sponsor the In it to Win It contest. So, if you are not already a member of the CAnswer Forum, go to: http://cancerbulletin.facs.org/forums/ and register today and start answering questions. Remember…You have to be In It to Win It!
Cancer Liaison Physician Terms Expiring July 1, 2011
Cancer Liaison Physicians (CLPs) serve a three-year term and are eligible to serve an unlimited number of terms based on performance and evaluation data collected at the time of survey. The terms of more than 200 CLPs will expire on July 1, 2011, and each cancer committee must determine whether the current CLP is appropriately serving in this role or if another candidate would better suit the position.
The CoC will send letters via e-mail to the cancer committee chairs of programs with a CLP whose term is expiring; cancer registrars will be notified as well. The facility must either reappoint the CLP for another three-year term or recommend a replacement to fill the role. The letter will provide instructions on how to do this.
Please use this time to update and confirm your CLP's contact information in the CoC’s database. We also accept assistant e-mail addresses to add to our CLP record.
Important Reminders for Approved Programs:
Following a new CLP appointment, the facility must update the staff contact information in the SAR located within the CoC Datalinks application.
CLPs can be replaced at any point during their three-year term. If a facility’s cancer committee would like to replace its CLP, then a CLP Membership Application Form should be completed at https://datalinks.facs.org/CLP_ncic_login.cfm.
Please note: A facility cannot appoint a new CLP by simply changing contact information within CoCDatalinks; the CoC must receive a signed application.
CLPs Look Forward to New Role Under Revised Standards
Beginning in January 2012, the role of the Cancer Liaison Physicians (CLPs) will be enhanced, with a focus on quality of care. New Standard 4.3 provides that the primary responsibility of the CLP will include monitoring and interpreting the program’s performance using National Cancer Data Base data to evaluate and improve the quality of care at their facility. Secondarily, the CLP will be responsible for reporting on Commission on Cancer (CoC) activities, initiatives, and priorities to the cancer committee; serving as liaison for the cancer program with the American Cancer Society; and being present during the CoC survey and meeting with the surveyor.
To familiarize the CLPs with their new role, the CoC has developed a series of five brief webinars, which CLPs will need to view during the next year.
More detailed information about the new role and educational requirements will be sent to CLPs in mid-June after the new standards have been finalized. Stay tuned!
Any questions can be directed to Carla Amato-Martz, Cancer Liaison Program Manager, at email@example.com or 312-202-5529.
NCDB Call for Data: Where Are We Now?
NCDB will stop accepting submissions at midnight the night of May 31, 2011, to process submissions made in May, and will reopen on July 1. Cases diagnosed in 2001 and 2006 that were added or updated by the registrar on or after July 1, 2007, must be submitted in July. Please follow your software provider’s instructions for selecting these cases. The 2006 cases are subject to Standard 3.7, and the deadline for corrections of any edit errors is September 30, 2011. Cases diagnosed in 2001 are not required to be edit-free, but should be as clean as possible.
If you created 2001 and 2006 diagnosis files before June 1, please recreate them in June.
Cases submitted in May (diagnosed in 2004 and 2007) with outstanding edit errors must be cleaned and resubmitted by July 31, 2011.
The FIPS Level II tables will be updated during June with any new site by stage information submitted in March and May after all cases have been fully processed. Programs whose tables have been updated will be notified when the changes are made.
New Enhancements to the NCDB Submissions Reports for 2011 Available in June
Within the next two weeks, the National Cancer Data Base (NCDB) will refresh the NCDB Submissions Reports for 2011 with the submissions made during May, debuting several enhancements:
• Submission bars for each submission month in 2011 are collapsible. Click on a bar to see entries for a specific month
• Full edit reports are available for each diagnosis year submitted during the submission month. Click on the number of cases requiring attention to see the report in pop-up mode. If there are no edit errors, this link is not available and no edit report is attached. (NCDB thanks C/NET Solutions for use of their EditMonster software to produce these reports.)
• A list of outstanding edits is available for the cumulative summary of submitted cases added to the NCDB database in 2011. Click on the cumulative number of cases requiring attention to see the list. If there are no edit errors from 2011 submissions, this link is not available and no edit list is attached.
• A new report summarizing use of default coding for many registry data items is attached to the NCDB Submission Reports for 2011. This report compares the facility’s use of unknown, not otherwise specified, or other default coding for 2009 diagnoses to NCDB overall. Click on the link on the NCDB Submission Reports for 2011 to see this report.
The documentation supporting the NCDB Submissions Reports for 2011 will be updated with screen shots and detailed information. It will be available at http://www.facs.org/cancer/ncdb/registrars.html, and also is linked to the reports.
The new Default Coding Reports are sensitive to the characteristics of the individual data items. Each incorporated item is assigned a criterion point for the proportionate use of specific codes. Where the proportion exceeds the criterion it is considered “out of range”. For example, if primary site surgery performed at the facility is coded 90 or 99 for more than 2 percent of cases diagnosed in 2009, that would be considered “out of range” because it is very unusual not to know the precise form of treatment for recent analytic cases treated by the facility. On the other hand, reporting a few items such as the National Provider Identifier number for the primary surgeon is inadequate, so a criterion of 50 percent is used to establish whether or not the facility is recording NPI-Primary Surgeon.
While programs are not required to correct and resubmit cases based on this report, NCDB encourages all programs to review their processes and correct them in the future if problems are found. Records corrected in the registry will automatically be submitted next January as part of next year’s Call for Data.
Save-the-Date: Survey Savvy – Fall 2011
Due to popular demand, we have added a fall Survey Savvy Workshop on September 15-16, 2011 at the Renaissance Hollywood Hotel & Spa in Hollywood, CA. The fall Workshop will feature education on the finalized standards for 2012. Please mark your calendars for this event. Registration is scheduled to open in June. Stay tuned to the CoC Flash for updates.
RQRS Webinar Available Now On-Demand
The following Webinar is now available for viewing On-Demand.
Move to the Fast Track: Getting your Cancer Program Ready for the Rapid Quality Reporting System (RQRS)
Visit the CoC Online Education Portal and register today to view this Webinar at your convenience. http://eo2.commpartners.com/users/acs/session.php?id=6297
New On-Demand Webinars Available in Mid-June
Visit the CoC Online Education portal and register for soon-to-be-available On-Demand Webinars.
1) Quality of Patient Care: Assessment and Measurement in the 2012 Program Standards
2) Program Management: Clinical Trial Screening and Accrual
3) New Cancer Program Standards 2012: Quality Studies and Quality Improvements
4) Cancer Committee Roles and Responsibilities
5) The Cancer Committee’s Role in Evaluation and Reporting
6) Important Accreditation Facts: New Program Categories, Accreditation Awards, and the OAA
7) 2012: Overview of the Survey Process
These titles will be added to the On-Demand registration page as soon as they are available.
Visit the CoC Online Education Portal by clicking on this link: http://eo2.commpartners.com/users/acs/
The AJCC now on YouTube
Last month, the American Joint Committee on Cancer (AJCC) announced the launch of its YouTube channel. If you have not visited the YouTube Channel, be sure to check out the videos posted there.
The YouTube channel is a new way for the AJCC to present educational information and interact with the oncology and registry community. The initial videos posted on the YouTube channel are the popular Staging Moments that go through the staging of a real cancer case. The initial videos will be followed by more Staging Moments videos and other informative videos. So be sure to “subscribe” to the AJCC channel so you can be notified when new videos are posted. Be sure to use all the features below the video display and leave feedback in the comments section, give a “thumbs up” if you like the video, and of course, share the video with colleagues. The AJCC will be monitoring the comments and feedback sections of the individual videos as well as the AJCC channel page for users input and suggestions. Click here to check out the AJCC on YouTube right now!
CS Forum Answers from NCRA to be Posted on CS Website
At the recent National Cancer Registrars Association’s (NCRA) Annual Conference, members of the Collaborative Stage (CS) team presented results of an online test that several hundred registrars participated in prior to the conference. At the NCRA meeting, members of the CS team went over the questions, showed the responses, and gave the correct answers with the rationale. Next, the CS team will post the questions, correct answers, and provide the rationale for all to view on the CS website. There are 10 questions for each of the four modules for a total of 40 questions. These modules will make a great learning exercise for CS coding. These documents will be posted on the CS website by June 15.
NAPBC Scheduled Two-Day Conference in November 2011
The National Accreditation Program for Breast Centers (NAPBC) will host a comprehensive, two-day conference at the American College of Surgeons headquarters in Chicago on November 18-19, 2011. This two-day conference will include national speakers who will discuss the importance of quality improvement at plenary sessions, panel discussions, breakout sessions, and ‘Lunch with the Experts.’ Attendees will learn how others have prepared for NAPBC accreditation. On the second day, the NAPBC will present, Pursuing Excellence through Accreditation, which provides centers with the “nuts and bolts” of applying for NAPBC accreditation, which is presented by NAPBC surveyors and staff, and includes presentations that will assist you in understanding NAPBC Standards, the application process, and the survey structure. More detailed information will soon be available.
Registration has not yet opened for the conference, but if you are interested in adding your name to a waiting list, contact the NAPBC administrative office at 312-202-5185, or send an e-mail expressing your interest in attending to firstname.lastname@example.org. Seating will be limited.
NAPBC Components and Standards Webinar
The Webinar—NAPBC Components and Standards—is now available as an on-demand recording. This 60-minute Webinar provides a comprehensive overview of the 17 components of care and the 27 standards that are required for NAPBC accreditation. The presentation includes a detailed discussion related to each of the standards, provides an overview of the definition and requirements, discusses what documentation is required in order to meet compliance with each standard, and explains the rating for each standard. The moderator also explains the importance of the three critical standards and the requirements association with each. You will find this on-demand Webinar at: http://eo2.commpartners.com/users/acs/archived_napbc.php. Purchase your on-demand Webinar today for $50.
For registration support, call 800-274-9390 or e-mail email@example.com.
NAPBC to Exhibit at ASCO
The National Accreditation Program for Breast Centers (NAPBC) will host an exhibit at the American Society of Clinical Oncology annual meeting, June 3-7, at McCormick Place in Chicago, IL. If you attend this meeting and have questions, or wish to pick up an NAPBC Information Kit, stop by Booth #2083 and see Tenisha Granville. To learn more about the NAPBC, visit http://www.accreditedbreastcenters.org, e-mail firstname.lastname@example.org, or call 312-202-5185.
2011 ACOA Oncology Update Conference Registration Now Open
The American College of Oncology Administrators (ACOA), a specialty group of the American Academy of Medical Administrators (AAMA), announced that registration is open for the 2011 ACOA Oncology Update. The Conference, which is co-hosted by the American College of Surgeons (ACS) Commission on Cancer, will be held June 22–24, in the ACS Conference Center in Chicago. This year’s theme is Achieving Excellence in the New Healthcare Era.
Conference offerings include two optional tours on Wednesday, June 22. Participants can take tours of the Maggie Daley Center for Women's Cancer Care at the Robert H. Lurie Comprehensive Cancer Center of Northwestern University and to the NorthShore University HealthSystem’s Kellogg Cancer Center.
Conference speakers will focus on the future of the healthcare environment. Patricia Goldsmith, Executive Vice President and Chief Operating Officer of the National Comprehensive Cancer Care Network, will present “Major Forces Impacting Oncology Care”. David Katz, MD, JD, Executive Director, The Advisory Board Company, Oncology Roundtable, will address “Cancer at the Crossroads: Delivering on the Promise of Patient-Centered Care”. Connie Bura, Administrative Director, Cancer Programs, ACS Commission on Cancer, will discuss “New Standards for Accreditation in 2012”. Two speakers from Sg2 will provide their perspectives to attendees with Lisa Slama, PhD, Associate Vice President, presenting “Cancer Payment and Legislative Update,” and Trevor Burgon, PhD, providing insight into “Future Trends in Breast Cancer Care Delivery: Clinical Alignment and Resource Effectiveness.” Other topics will include the Oncology Revenue Cycle, Multidisciplinary Care Models, Survivorship Programming, and Effective Marketing Strategies.
Laptop computers will be provided for the conference sessions, which will be held in a technological environment. Attendance is limited to 100 participants to ensure effective interaction and speaker access. The conference hotel is the Allerton Hotel at 701 N. Michigan Avenue on Chicago’s Magnificent Mile. For full details, go to the ACOA Conference page on the American Association of Medical Assistants website.
Molecular Imaging in Surgery
by Eva Sevick, PhD
While the nuclear imaging community has traditionally focused upon the development of radiopharmaceuticals for diagnostic gamma scintigraphy, PET, and SPECT imaging, a new imaging modality may bring molecular imaging into the surgery and surgical pathology. A plethora of preclinical studies have shown the utility of molecularly targeted, near-infrared fluorescence imaging agents for intraoperative detection of cancer-positive lymph nodes in head and neck, breast, and prostate cancers as well as delineation of tumor margins. Indeed several groups have developed and demonstrated the feasibility of peptide and antibody based targeting agents that are dual labeled for non-invasive PET and SPECT imaging in the nuclear imaging suite and near-infrared fluorescence imaging in the OR. The ability to dual label for hybrid nuclear and fluorescence imaging may in the future, extend the clinical utility of molecular imaging agents into the OR, enabling direct correlation between disease detected by non-invasive diagnostic PET and SPECT and disease resected using fluorescence guidance.
Both nuclear and fluorescence imaging are based upon collection of photons, albeit at different energies and photon count rates. High energy gamma photons emitted following decay of radionuclides directly transit through tissues, enabling planar (scintigraphy) or tomographic imaging. Low energy, near-infrared fluorescent photons multiply scatter through tissues, but because they are produced by the repeated relaxation and activation by tissue-penetrating near-infrared excitation light, the photon count rate can be significantly greater than that from the decay of radionuclides. Near-infrared excitable dyes (i.e. dyes excited by near infrared light >750 nm) are required since visible excitation light activates endogenous fluorophores, creating significant background that can obscure fluorescence from an exogenous agent. In the operating suite, a non-radioactive probe can be convenient and mitigate logistical difficulties that can arise owing to a radioactive probe. Nonetheless, manufacturers of near-infrared fluorescent imaging systems need to be mindful of the sensitivity issues. For molecular imaging, camera systems need to have rapid or near-real time output while maintaining the sensitivity that is the hallmark of nuclear molecular imaging. Afterall, intraoperative discrimination of diseased tissues based upon the femto- to pico-molar tissue concentration of disease markers requires low background and high signal to noise. To date, no near-infrared fluorescent dyes that can be conjugated to targeting moieties have been introduced into humans. Indocyanine green, a comparatively unstable dye with no functional groups for conjugation, has been used off-label for both non-invasive and intraoperative imaging of the lymphatics, hepatobiliary system, and sentinel nodes. Near-infrared fluorescent dyes have been shown to have adequate safety and toxicity profiles and with optimized instrumentation, could be employed to bring molecular imaging into the OR.
Free Webinar: Best Practices in Treating Tobacco Dependence
The American Cancer Society, American Diabetes Association and the American Heart Association invite you to join us for a free Webinar on best practices in treating tobacco dependence, presented by Dr. Richard Hurt of Mayo Clinic Nicotine Dependence Center. Please join us for this educational Webinar:
Tuesday, June 7, 2011
12 Noon- 1pm EDT / 11 AM - 12 PM CDT
Pharmacotherapy for Tobacco Dependence
Richard D. Hurt, MD
Professor of Medicine, College of Medicine
Director, Nicotine Dependence Center
Mark your calendar for June 7, 2011 at Noon EDT. To join the Webinar, go to http://tinyurl.com/tobacco-webinar and dial 888-390-0971. If you are having trouble with that link, go to http://guidelineadvantage.org for additional information.
The LIVESTRONG Survivorship Center of Excellence Network
The LIVESTRONG Survivorship Center of Excellence Network (Network) was established in 2005 to advance survivorship care and improve the health and quality of life of post-treatment cancer survivors. Over the course of the last five years, Network members have expanded knowledge of the field of survivorship, pioneered new interventions for cancer survivors and developed, evaluated and disseminated survivorship best practices to national and international audiences, including best strategies for—and challenges to—instituting a survivorship care program.
In the newly released report, Defining survivorship care: Lessons learned from the LIVESTRONG Survivorship Center of Excellence Network, we have summarized the contributions of the Network to date; provided information about the eight centers; offered insight from a qualitative deductive study conducted on the Network; and proposed next steps for accomplishing the goals set forth by the Network five years ago.
By assessing and analyzing diverse practice patterns, the Network has uncovered four key findings: 1) Creating a “cultural shift” in the delivery of care to survivors is a major challenge but necessary for successful provision of survivorship services; 2) Garnering support from diverse institutional leaders is essential to successful integration of survivorship care; 3) Forging community connections is crucial to reaching underserved populations; and 4) Delineating the essential elements of care—rather than setting forth one specific care model—best ensures quality of care for survivors across diverse service delivery systems.
Utilizing the knowledge collected to date, along with insights from a deductive qualitative study of the collaboration, the Network is poised to continue moving the field of cancer survivorship care forward by focusing on three goals:
1) Developing the essential elements of care delivery that represent the expectations for what constitutes an effective cancer survivorship program.
September 15th – 16th LIVESTRONG will host the Essential Elements of Survivorship Care Meeting in Washington DC. During this meeting, about 100 leaders, stakeholders, and experts will work collaboratively for two days in an interactive format. We will expand upon the recommendations of the IOM and build upon the Network findings to make practical suggestions about what elements of survivorship care are feasible to implement and how to overcome the challenges associated with implementation. A new, refined, and more detailed list of "essential elements" with strategies for implementation will be the intended outcome of this ambitious effort.
2) Conducting and sharing results from collaborative research projects that advance the field of survivorship.
Currently, the Network is conducting a multi-site study to understand the use and implementation of survivorship care plans.
3) Disseminating the models of care delivery and lessons learned through trainings, toolkits and presentations.
October 20th – 21st we will host the LIVESTRONG Leadership Training Institute in Boston, MA. At the Training Institute, providers and administrators of cancer centers can learn from Network Directors and other leaders in the field how to develop sustainable survivorship programs in their own community or clinical settings.
To learn more about these initiatives or to attend these meetings, please contact Dr. Ruth Rechis at email@example.com
NCRA Releases New Edition of Cancer Registry
NCRA has released a new edition of Cancer Registry Management: Principles and Practices for Hospitals and Central Registries, a valuable resource for learning about cancer registration! This textbook provides detailed information on the essential responsibilities of a cancer registrar and showcases new discoveries and improved technologies. The book contains 42 chapters organized into six sections:
• Planning and Design of Registries
• Uses of Registry Data
• Standard Setters and Professional Organizations
• Central and Other Registries
The textbook comes with a CD Review Guide that includes Question and Answer sections for each chapter, providing educators and students a quick way to gauge understanding. Earlier editions of the textbook were published as two separate companion volumes: one targeted to hospital cancer registries and the other to central or population-based cancer registries. The third edition brings the two previous volumes together.
NCRA member price: $163
Non-member price: $189
Order Today at http://www.ncra-usa.org/i4a/pages/Index.cfm?pageID=3469
Monthly Spotlight: American Psychosocial Oncology Society
The Commission on Cancer regularly collaborates with over 50 member organizations in its mission to provide quality cancer care. This month we introduce the American Psychosocial Oncology Society (APOS).
The mission of the APOS is to advance the science and practice of psychosocial care for people with cancer. Given this focus, APOS will provide valuable guidance and resources with the implementation of new ACoS patient-centered standards on distress screening, patient navigation, and survivor care. APOS is the only multidisciplinary professional organization in the United States devoted solely to psychosocial care in cancer. Members of APOS represent multiple disciplines, including oncology, psychology, psychiatry, social work, nursing, counseling and patient advocacy. APOS has become the authoritative voice on the implementation of the Institute of Medicine report on Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs (2007).
Many APOS members are actively involved in research and have contributed to the evidence base on which the Institute of Medicine 2007 report was based. Research findings and evidence-based practices are disseminated through APOS publications, such as its Quick Reference guides for oncology clinicians in pediatric and adult cancers, at APOS annual scientific conferences and through APOS’ official journal Psycho-Oncology (Wiley). The APOS website also offers free online education in distress management and psychosocial aspects of cancer survivorship, among others.
APOS provides a toll-free helpline that aims to connect cancer patients and their caregivers to local psychosocial care providers, such as psychologists, psychiatrists, nurses, social workers and counselors, who are skilled in the management of cancer-related distress. Health care providers may refer patients to the helpline or call directly to request referral information (866-APOS-4-HELP, or 866-276-7443).
APOS 9th Annual Conference and Preconference Training, February 23 – 25, 2012, Miami, FL. Conference theme: Reducing health disparities in quality cancer care: Psychosocial research, practice and outreach
Resources of Interest to ACoS Institutions:
Free online education programs for oncology health care providers:
Multidisciplinary Training in Psycho-Oncology
ICAN: Distress Management Training for Oncology Nurses
Cancer 101 for Mental Health Professionals
Psychosocial Aspects of Cancer Survivorship
APOS referral line for local psychosocial providers:
For more information on this organization, please contact:
Web site: http://www.apos-society.org
Monthly Spotlight: LIVESTRONG (Lance Armstrong Foundation)
The Commission on Cancer regularly collaborates with over 50 member organizations in its mission to provide quality cancer care. This month we introduce the LIVESTRONG (Lance Armstrong Foundation).
LIVESTRONG fights for the 28 million people around the world living with cancer today LIVESTRONG feels there can be - and should be - life after cancer for more people. That’s why they kick in at the moment of diagnosis, giving people the resources and support they need to fight cancer head-on. They find innovative ways to raise awareness, fund research and end the stigma about cancer that many survivors face. LIVESTRONG connects people and communities to drive social change, and call for state, national and world leaders to help fight this disease. The organization seeks to promote the optimal physical, psychological and social recovery and care of cancer survivors and their loved ones by focusing its activities on survivorship education and resources, community programs, national advocacy initiatives, and scientific and clinical research grants.
The LIVESTRONG Survivorship Center of Excellence Network program is under the leadership of Andy Miller, MHSE, CHES, Executive Vice President, Mission, Ruth Rechis, PhD, Director, Research & Evaluation and Sarah R Arvey, PhD, Senior Manager, Research & Evaluation. The Network is comprised of eight National Cancer Institute (NCI)-designated cancer centers:
• Abramson Cancer Center, University of Pennsylvania
• Dana-Farber Cancer Institute
• Fred Hutchinson Cancer Research Center
• Jonsson Comprehensive Cancer Center at UCLA
• Memorial Sloan-Kettering Cancer Center
• The Ohio State University Comprehensive Cancer Center – Arthur G. James Cancer Hospital and Richard J. Solove Research Institute
• University of Colorado Cancer Center
• University of North Carolina Lineberger Comprehensive Cancer Center
Essential Elements of Survivorship Care Delivery; Washington, DC; September 15-16, 2011
LIVESTRONG Leadership Training Institute; Boston, MA; Oct 20-21, 2011
Recent Publications and/or Products:
Campbell MK, Tessaro I, Mindy Gellin, Carmina G. Valle, Shannon
Golden, Leanne Kaye, Patricia A. Ganz, Mary S. McCabe, Linda A. Jacobs, Karen Syrjala, Barbara Anderson, Alison F. Jones, Kenneth Miller. Adult Cancer Survivorship Care: Experiences from the LIVESTRONG Centers of Excellence Network. J Cancer Survivorship, 2011: May 10. [Epub ahead of print].
Rechis, R & Eargle, E. Defining survivorship care: Lessons learned from the LIVESTRONG Survivorship Center of Excellence Network. A LIVESTRONG Report, 2011.
For more information on this organization, please contact:
Ruth Rechis, PhD
Email: firstname.lastname@example.org | Web site: www.livestrong.org
Monthly Spotlight: National Coalition for Cancer Survivorship
The Commission on Cancer regularly collaborates with over 50 member organizations in its mission to provide quality cancer care. This month we introduce the National Coalition for Cancer Survivorship (NCCS).
The NCCS is the oldest survivor-led cancer advocacy organization in the country, advocating for quality cancer care for all people touched by cancer. Since NCCS was founded 25 years ago, the organization has worked diligently to improve the delivery of quality cancer care by driving federal policy, collaborating with other organizations, educating physicians and empowering people living with, through and beyond cancer. Under the leadership of President and CEO Tom Sellers, NCCS represents the nearly 12 million people living with cancer, as well as the family, friends, and caregivers who join in the cancer journey.
As a leader in healthcare policy, NCCS identifies and shapes policies that influence systemic changes at the federal level in the research, financing and delivery of quality cancer care. At its signature bi-annual Cancer Policy Roundtable event, NCCS brings together key stakeholders in the patient community, including advocates, researchers, regulators, clinicians, academics and biotechnology and pharmaceutical companies to discuss the latest issues surrounding the delivery of quality cancer care. Through its policy agenda, NCCS works to ensure patient-centered, coordinated care through the vehicle of care planning is a top priority in any cancer care provided for all survivors.
NCCS also provides free tools and resources to help cancer survivors take charge of their care. Patients are more likely to receive optimal care when they make their needs known to their doctors, care teams, health plans and elected officials. This is known as self-advocacy. One of NCCS’s premier resources is its award-winning Cancer Survival Toolbox®, a free self-learning audio program to help survivors develop important skills to better meet and understand the challenges of their cancer diagnosis.
Every year on the first Sunday in June, people around the country commemorate National Cancer Survivors Day. This June 5, 2011, help us celebrate National Cancer Survivors Day and the growing number of cancer survivors by visiting NCCS’s website, www.canceradvocacy.org, to check out all of the free tools and resources we have to offer to anyone touched by cancer. You might want explore some of our free publications, like Teamwork, a booklet developed by cancer survivors and healthcare professionals which serves as a patient’s guide to talking with their doctor. Or learn more about our Journey Forward program, which provides tools and resources to help survivors and their physicians, build an individualized plan of follow-up care after cancer treatment. On National Cancer Survivors Day, NCCS will not only celebrate the recently reported growing number of cancer survivors in the United States, but will also reaffirm its commitment to meeting the pressing needs of survivors everywhere living with, through and beyond cancer.
Recent Publications and/or Products:
One of NCCS’s latest resources is a Survivorship Library, which was launched at the end of April as a part of the Journey Forward program. The Survivorship Library is a free online database of over 50 articles on survivorship care that users can search by cancer type and audience to gather information specific to their needs that is available at www.journeyforward.org. The Survivorship Library is also available to patients and healthcare professionals to inform their use of Journey Forward’s Survivorship Care Plan Builder as they coordinate a post-treatment plan.
A full list of NCCS’s tools and resources can be found at www.canceradvocacy.org.
For more information on this organization, please contact:
NCCS, 1010 Wayne Avenue, Suite 770, Silver Spring, MD 20910
Phone: 301-650-9127 or 888-650-9127 (toll-free) | Fax: 301-565-9670
Email: email@example.com | Web site: www.canceradvocacy.org