The CoC Source - February 28, 2013
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Society of Surgical Oncology to Recognize David P. Winchester, MD, FACS
Dr. David Winchester will receive the Society of Surgical Oncology (SSO) Distinguished Service Award at their annual meeting scheduled for March 6-9, 2013 in Washington, DC.
This new award was created by the Society’s Executive Council in September, 2012 and is the successor to the Annual Heritage Presentation which previously and exclusively honored past presidents of the SSO.
The SSO Distinguished Service Award will be given to a Surgical Oncologist who has demonstrated outstanding contributions to surgical oncology, either through their service to the SSO, their outstanding research, or for enhancing the clinical care and improving the lives of cancer patients.
The 2013 honoree will be David P. Winchester, Sr., MD, FACS, from the Department of Surgery at NorthShore University Health System in Evanston, IL, for his extraordinary efforts on behalf of the American College of Surgeons and specifically for his leadership role within the Commission on Cancer that has defined standards and substantially elevated the quality of cancer care in the United States.
CoC in the News
The CoC Chair, Daniel P. McKellar, MD, FACS, was quoted in the Sunday, February 2 edition of the State Journal-Registrar of Springfield, IL in an article by Dean Olsen on the rehabilitation program at Memorial Medical Center. Memorial has joined around 80 programs across the country that have become certified to offer the STAR program since 2009. STAR Program Certification consists of an evidence-based education and training program that hospitals and cancer centers offer to their administrative and clinical staff in order to quickly and expertly develop superior oncology rehabilitation services
Dr. McKellar stated that the new guidelines adopted by the CoC are expected to result in more patients receiving rehab services, and that in general, the cancer profession has finally started to recognize the importance of survivorship care and that rehab services are an essential part of modern cancer care. The full text of the article is available at: http://www.sj-r.com/top-stories/x930795003/Memorial-rehab-program-offers-benefits-to-cancer-survivors
CoC Presentations and Posters Featured at the Society of Surgical Oncology Annual Meeting
Jennifer Paruch, MD, and Ryan Merkow, MD, both clinical scholars working under a two-year Fellowship at the American College of Surgeons and with the National Cancer Data Base, will be presenting during the SSO Meeting on the following topics:
- Is Cancer Center Accreditation Associated with Improved Hospital Performance on Publicly Report Quality Metrics?
- Do Hospitals need Cancer-specific Quality Comparisons? Assessment of Performance for Cancer vs. Non-Cancer Surgery
- Should Margin Status Be Monitored as an Outcome Following Pancreatic Cancer Surgery?
- Postoperative Complications Reduce Adjuvant Chemotherapy Use in Resectable Pancreatic Cancer
In addition, the following posters will highlight contributions the National Cancer Data Base is making to the clinical community:
- Limited Thoracic Lymphadenectomy Worsens Survival in 55,122 Patients with Resected Stage I Non-Small Cell Lung Cancer
- Impact of Bilateral versus Unilateral Mastectomy on Short Term Outcome and Adjuvant Therapy
- Current Utilization of Endoscopic Resection and Risk of Lymph Node Metastases for Early Gastric Cancer in the U.S.
- Trend Toward Increasing Utilization of Radiation in Malignant Phyllodes Tumors: An Analysis of Over 3200 Patients from 1998 to 2009
- Is it as Safe and Easy as We Think? A Significant Opportunity to Improve Operative Mortality After Gastrectomy
New Weekly e-Newsletter to Premier March 6
Watch your e-mail on March 6 for the inaugural issue of The CoC Brief. This weekly news brief is a digest of current information on cancer care trends, treatments, legislative activity and issues. Watch your e-mail on March 6 for this important resource that is provided to the staff at all CoC-accredited programs. We hope that you share this news brief with other staff in your facility. Feel free to include the information in your internal and external newsletters
Your feedback is important to us. The CoC is looking to provide you with the services and tools you need to deliver quality patient care, and we are looking for your feedback. Please send your comments and suggestions on The CoC Brief to Susan Rubin at firstname.lastname@example.org.
Visit the CoC Exhibit Booth at the ACC Annual Meeting
If you are attending the Association of Cancer Centers 39th Annual National Meeting, in Washington DC, March 6-8, be sure to attend the roundtable presentation facilitated by Asa Carter, CTR, Manager, Accreditation and Standards on Troubleshooting the New CoC Standards. This session will be held on March 7, from 2:45 -3:45 pm. Continue your conversation with Asa at the CoC Booth (305) and learn more about the 2013 CoC Accreditation Standards, the new Survey Application Record (SAR), and the National Cancer Data Base (NCDB) reporting tools. Don’t miss this opportunity be one of the first to view a selection of the newly released 2013 CoC Standards videos. This series of 29 videos can be accessed free from the CoC Website and YouTube and address some of the most common questions regarding the standards
CoC Recognizes Long-Standing Programs
Commission on Cancer (CoC)-accredited cancer programs provide their community with high-quality, multidisciplinary, patient-centered cancer care while continuing to evolve and grow in response to new diagnostic and treatment modalities, quality assurance and improvement initiatives, and the needs of cancer patients and their families. Currently, there are nearly 1,500 CoC-accredited programs throughout the U.S.
This month, the CoC recognizes accredited programs that have maintained their accreditation for 75–79 consecutive years. Note: The year in parenthesis is the first year that the program was accredited.
Congratulations to the following programs for reaching this milestone:
Albany Medical Center (1938), Albany, NY
Arrowhead Regional Medical Center (1937), Colton, CA
Atlanta VA Medical Center (1937), Decatur, GA
Boston Medical Center (1937), Boston, MA
Central Maine Medical Center (1937), Lewiston, ME
Englewood Hospital & Medical Center (1938), Englewood, NJ
Holzer Medical Center (1937), Gallipolis, OH
Interim LSU Public Hospital (1934), New Orleans, LA
James J. Peters VA Medical Center (1935), Bronx, NY
LACUSC Medical Center (1935), Los Angeles, CA
Lahey Clinic Hospital (1935), Burlington, MA
Lehigh Valley Hospital - Cedar Crest (1938), Allentown, PA
MaineGeneral MC - Waterville Campus (1938), Augusta, ME
Medical University of South Carolina (1936), Charleston, SC
Mercy Hospital and Medical Center (1938), Chicago, IL
Mid-Maine Medical Center, (1938) Waterville, ME
Naval Medical Center San Diego (1938), San Diego, CA
Richmond University Medical Center (1937), Staten Island, NY
Robert Packer Hospital (1938), Sayre, PA
Saint Vincent Catholic Medical Centers (1937), Staten Island, NY
Spartanburg Regional Medical Center (1938), Spartanburg, SC
The University of Kansas Hospital (1934), Kansas City, KS
UMass Memorial Medical Center (1934), Worcester, MA
United Health Services Hospitals (1937), Johnson City, NY
University Hospital, (1934) Cincinnati, OH
University of Iowa Hospitals and Clinics (1936), Iowa City, IA
University of Nebraska (1938), Omaha, NE
University of Virginia Health System (1934), Charlottesville, VA
VA Medical Center (1936), Portland, OR
Waterbury Hospital Health Center (1934), Waterbury, CT
To review the list of programs that have been CoC-accredited for more than 80 years, please refer to the January 2013 issue of The CoC Source.
The Advocacy Subcommittee of the CoC met in January to determine how the CoC will participate actively in legislative or regulatory policy issues.
The proposal is for a two-pronged approach to approving policy issues for endorsement by the CoC. For far-reaching legislation, the endorsement process will be to outline the policy issue to be considered during a monthly subcommittee call or, if time-sensitive, as the issue is brought to the attention of the subcommittee. Upon a decision by the subcommittee to endorse, support from member organizations will be sought using an ‘opt out’ procedure. Formal approval from the CoC Executive Committee and the American College of Surgeons Legislative Committee or Health Policy Advisory Group will then be sought leading ultimately to formal endorsement by the CoC.
The second approach is to develop a portal to inform our member organizations and CoC-accredited programs about legislative or regulatory issues that are proposed for consideration. The portal would push the issues out to our constituents while providing a consensus endorsement option based on guiding principles to encourage organizations to sign onto these issues on their own behalf. This portal will serve as a member benefit to all member organizations and CoC-accredited programs.
Watch The CoC Source for monthly news on cancer-related policy issues.
New Link Added to Survey Application Record Menu
In the new SAR Menu, you will find a new link listed with the five chapters of the 2012 standards. The link is called Agenda, Presentations, Accession List and Other.
Both surveyors and cancer programs have access to this link and should review the documents uploaded in this area before survey, as appropriate.
The following documents should be uploaded through this link for the survey:
Having the above documents available in a centralized location will help the survey become a smoother process and contribute to the overall success of the survey.
- Draft Agenda: The cancer program can download this document and work with the cancer committee and surveyor to create a finalized agenda for the survey.
- Final Agenda: The cancer program will upload the final agenda to the second table on the screen at least two weeks before survey takes place.
- Surveyor’s PowerPoint Presentation: Surveyor uploads the PowerPoint presentation that he or she will be delivering to the program by day of survey. (maximum 10MB)
- Cancer Programs Power Point Presentation: The cancer program uploads the presentation on a program outcome or accomplishment to the SAR Menu preferably by the day of the survey or no later than 3 business days postsurvey. This presentation is optional for the program. (maximum 10 MB)
- Accession List: The cancer program uploads the 2011 Accession List from 2nd quarter through 4th quarter with the accession number, sequence, class of case, and the name of the surgery performed at facility. This document is to be uploaded for the surveyor to select cases for abstract and pathology report review at least two weeks before the survey takes place. The surveyor will review and provide a list of 20 cases before the survey via e-mail.
Deficiency Resolution Documentation
Programs resolving deficiencies using the 2012 standards now have an updated deficiency resolution document to use as a resource. The 2013 Deficiency Resolution Documentation document is located on the Cancer Programs page. The document lists all the 2012 standards by number and text, the corresponding 2004/2009 standard, if applicable, and the required resolution documentation. This document can be referred to when resolving deficiencies from 2012 or 2013 surveys.
The deficiency resolution screen in CoC Datalinks will be available within the next few weeks and will be a component of the Performance Report. You will be able to select the standard, upload documents, and enter required comments regarding the document and the plan for compliance by your cancer program. (The required comments will replace the cover letter.) From that same screen, you will also be able to view the required resolution documentation for that specific standard as a resource available at your fingertips.
Time to Check the Status of Your NCDB Data Submission
All files submitted to NCDB in January have been processed, along with corrections submitted by mid-February. All programs should check now to be certain that all required cases are recorded in Datalinks, and that no outstanding errors remain. Submissions to NCDB are recorded in two areas of Datalinks.
All cases diagnosed in 2003 or later that had edit errors must be corrected and resubmitted by April 1 for compliance with Standard 5.6 (Accuracy of Data). Programs are encouraged to address those now. Rejected cases that can be corrected must also be corrected and resubmitted by that date, regardless of the date of diagnosis. Rejected cases that should not have been submitted (for example, because the diagnosis was before the program’s reference date or the case was nonanalytic) do not need to be resubmitted; they will be rejected again.
- On the Activity page, under National Cancer Data Base (NCDB) Data Transmission, select “NCDB: Data Submission History and Edits.” This comprehensive report displays submissions by date of submission, so it is easy to find all 2013 submissions. Selecting “View detail” will show the numbers of cases submitted in the respective file by year of diagnosis. It will also enumerate whether there were any edit problems or rejected records in that file.
- The other Datalinks location is in the Survey Application Record under Standards 5.5 (Data Submission) and 5.6 (Accuracy of Data), where the data submitted are displayed by year of diagnosis. This display is designed for survey preparation, and it is not quite as helpful for checking recent submissions as the NCDB History and Edits section.
It is expected that the number of cases submitted will be highest for 2011 diagnoses, and will decrease gradually for each earlier diagnosis year because patients whose deaths have already been reported to NCDB are not generally selected for annual submission. However, if a particular diagnosis year shows a sudden drop in the number of cases or the number trickles to only a few, there is a possibility that not all of your cases were submitted. Please contact NCDB at email@example.com if this appears to be the case for your program. A description of the cases that are required to be reported in 2013 is posted on the NCDB Registrars page at http://www.facs.org/cancer/ncdb/registrars.html.
All NCDB reports and applications will be updated in the coming months based on data received through the April 1 correction deadline. Under-submission can affect the program’s performance on:
as well as its representation for the:
- Accountability Measures (S 4.4)
- Quality Improvement Measures (S 4.5)
- Data Submission (S5.5) and
- Accuracy of Data (S5.6)
Cancer committees are reminded that it is their responsibility to ensure continuity of registry staffing when a registrar departs or is on extended leave. Additional standards that can be affected by understaffing in the registry include:
- Hospital Comparison Benchmark Reports
- Survival Reports
- Site by stage reports for the Hospital Locator and
- NCDB Completeness Reports
The CoC does not give submission or survey extensions for delays due to lack of adequate registry staffing.
- Abstracting Timeliness (S5.2)
- Follow-Up of All Patients (S5.3)
- Follow-Up of Recent Patients (S5.4) and
- CoC Special Studies (S5.7)
Application Deadline for the Participant User File (PUF) is March 29, 2013
The National Cancer Data Base (NCDB) is excited to extend the 2013 Request for Applications for the Participant User File (PUF) to investigators associated with CoC-accredited programs. Information regarding the PUF and the application process can be found at: http://www.facs.org/cancer/ncdb/participantuserfiles.html. The deadline for the application process is March 29, 2013. Awarded PUFs are anticipated to be released to successful applicants in July 2013. These PUFs will be organ-site specific per the research interests of the investigator. Included in these PUFs are cases diagnosed between 1998 and 2011. The PUFs are available in both SAS and SPSS file formats.
GenEDITS Plus Update Available
CoC programs submitting to the NCDB or Rapid Quality Reporting System (RQRS) after upgrade to North American Association of Central Cancer Registries (NAACCR) layout 13.0 will want to use the new update to GenEDITS Plus, version 1.2.6. Besides software vendor communications, the secret to knowing if your most recent registry upgrade incorporates layout 13.0 is that the new upgrade introduces the new country data items. Visit EDITS Software and Metafile for links to downloading the GenEDITS Plus software. The GenEDITS Plus version 1.2.5 worked intermittently for layout 13.0 (no one knows why), but version 1.2.6 works well and even introduces a few new features.Programs that have submissions to make in layout 12.2 (pre-upgrade) may also use version 1.2.6; however, they must continue to use the metafile and configuration files designed for layout 12.2.
Recent Publications and Presentations
following article was published using data from the National Cancer Data Base.
Mallin, K, Palis, B, Watroba, N, Stewart, A, Walczak, D, Singer, J, Barron, J, Blumenthal, W, Haydu, G, and Edge, S studied the “Completeness of American Cancer Registry Treatment Data: Implications for Quality of Care Research.” Their reported research was recently published online January 28, 2013, Journal of the American College of Surgeons. The authors concluded that hospital-based registries for breast and colon cancer diagnosed in 2004–2006 captured about 85% of radiation and chemotherapy data compared with claims data, a higher percentage than earlier reports. The abstract can be found at http://www.journalacs.org/article/S1072-7515(12)01406-8/abstract.The National Cancer Data Base (NCDB) also serves as a resource for scientific findings presented at national meetings.
An oral presentation by Sherman, KL, Shah, A, Merkow, RP, Wang, CE, Bilimoria, KY, and Bentrem, DJ was presented at the Academic Surgical Conference February 5, 2013. They concluded that utilization of non-emergent surgical treatment and C/RT for metastatic gastric adenocarcinoma is on the rise. Despite an obvious selection bias, patients who underwent surgical resection and C/RT demonstrated improved survival when compared to other treatment groups.
The New and Improved Cancer Liaison Physician Information Board
The Cancer Liaison Physician (CLP) website has been updated. The homepage features easy navigational links to the resources that support the main aspects of your CLP role (NCDB tools, educational webinars, and American Cancer Society resources). You no longer have a long list of options in your search for information.
Easy access has been provided to three webinars that were previously only available through the CoC’s Online Education Portal. They are now directly linked to your information board under the “Watch Cancer Liaison Physician Webinar” tab†. The Orientation webinar is still only available through the CoC’s Online Education Portal for tracking purposes.A new CLP Toolkit has been posted on this board. In this toolkit you will find helpful information about your roles and responsibilities as liaison physicians, helpful resources to guide your work, a “How to Get Started” checklist, and answers to commonly asked questions.
We hope this new and improved CLP Information Board will give you concise information that supports your role as a CLP. The information board can be found on the CoC website at http://www.facs.org/cancer/clp/physresource.html. If you have any questions, comments, or suggestions, please e-mail us at firstname.lastname@example.org.
* The NCDB Primer webinar is being updated and is no longer available.
† CME is no longer available for the webinars posted on this site.
Process for Appointing or Reappointing Your Cancer Liaison Physician
The process to reappoint or appoint a new cancer liaison physician (CLP) has been simplified.
New Appointment Process
1. Log into CoCDatalinks.
2. Go under Manage Staff Contact.
3. Under Pending Contacts section, select Add Contact.
4. Enter the CLP name and contact information in this window.
5. Click the save button. This change will come directly to the Cancer Liaison Program for processing. An appointment letter will be sent to the CLP and notification to the cancer program staff via e-mail.
Remove Former CLP
1. Log into CoCDatalinks.
2. Go under Manage Staff Contact.
3. Click on former CLP’s name to expand their record.
4. Click the remove button. A box will open asking if you want to remove this contact. Click OK.
Send an e-mail to email@example.com with your CLP’s name and e-mail address stating that your program would like to reappoint them to an additional term. An e-mail will be sent to the CLP and program staff confirming reappointment.
If you have any difficulty with this process, send an e-mail to firstname.lastname@example.org.
NOTE: If your accredited facility does not have a CLP in place you are in jeopardy of being in non-compliance with CoC accreditation standards 1.3 and 4.3. It is important that an appointment is made as soon as possible and that an individual is designated as the CLP in CoC Datalinks. If there is not a CLP appointed for your facility and recorded in CoC Datalinks, the CoC recommends that the Cancer Committee Chair be listed as the interim CLP until an official appointment is made.
New Videos on CoC Standards Now Available
The CoC has launched a new series of 29 free videos, created to assist you in understanding and interpreting the CoC Standards. This series includes an introduction video, two videos describing the Eligibility Requirements, and an additional 26 videos describing select standards. Each video begins with the definition of the standard, describes the requirements for meeting the standard, and concludes with best practice information. These videos can be viewed individually, or shown during staff meetings to assist in clarifying standards requirements. We hope that you and other members of your cancer committee find these videos useful as you work to implement and maintain compliance with the CoC Standards.Videos available here on the CoC website: http://www.facs.org/cancer/coc/video/index.html
Videos available here on YouTube: http://www.youtube.com/playlist?list=PLe1WVrjVvNFctTdjDcYaVFNzLUpWLA6Qd&feature=view_all
Survey Savvy 2013 - SAVE THE DATE
The next Survey Savvy will be June 27-28, 2013 in Chicago. There will be an optional Rapid Quality Reporting System (RQRS) Workshop on June 26, held at College Headquarters. We will be examining the new 2012 Standards in greater depth at this conference.
Program Description:Learning Objectives:
Cancer Program Standards 2012 expanded the current requirements to assess and improve patient care and outcomes and established a new focus on patient-centered care provided in CoC-accredited facilities. This year’s panel presentations will highlight a variety of successful strategies implemented by facilities to meet the patient-focused and quality standards. Panel presenters will facilitate a series of breakout sessions where participants will be engaged in developing an action plan to address challenging issues in their cancer program.
Interpret the requirement for the patient-centered and quality-focused standards
Describe a variety of successful methods employed to meet new standards and requirements
Break down the successful methods into key components that are adaptable to different settings
- Build custom strategies to address issues and implementation in the local setting
Registration will be $600 per person for those from accredited facilities and $700 per person for those from non-accredited facilities. The hotel rate is $239 per night. Registration is set to open in late March. A special edition of the The CoC Source will be sent out once we have an exact date.
Pursuing Excellence Through Accreditation Workshop
Registration opens March 4! Join us for the National Accreditation Program for Breast Centers (NAPBC) full-day workshop, Pursuing Excellence through Accreditation, at the American College of Surgeons headquarters in Chicago, IL, on Friday, May 24. This workshop will provide detailed information related to the NAPBC components and standards, survey process, the quality measures, and related requirements for 2013 and beyond. Attendance at this workshop will assist centers applying for accreditation as well as centers due for reaccreditation in 2013. Detailed information will be presented by NAPBC Board members, surveyors, and staff. Most importantly, there will be a detailed presentation of NAPBC components and standards; including what is required in order to meet compliance with each standard. The workshop will also incorporate any recent changes to the standards so that there is a clear understanding of what is expected and how it will be measured. Another detailed presentation, “What to Expect on the Day of Survey,” will walk you through a site visit from a surveyor’s perspective. Learn about what the surveyor is looking for during different aspects of the survey.
The Pursuing Excellence through Accreditation Workshop is designed for individuals involved in the delivery of multidisciplinary breast health care, including physicians, nurses, administrators, cancer registry professionals, and others involved in the day-to-day operations of the breast center.
If you have questions, please contact the NAPBC office at 312-202-5185, or by e-mail at email@example.com. Online registration will open on March 4, 2013 at www.napbc-breast.org. If you wish to request early registration, please e-mail firstname.lastname@example.org.These workshops are always well-attended and seating is limited. Enrollment will be on a first- come, first-served basis.
NAPBC Exhibit ScheduleThe NAPBC will have an exhibit at the following meetings:
Association of Community Cancer Centers
Washington Marriott Wardman Park
23rd Annual Interdisciplinary Breast Center Conference sponsored by the National Consortium of Breast CentersIf you will be attending these meetings and have questions, or wish to pick up an NAPBC Information Kit, stop by any one of these exhibits.
Paris Las Vegas Hotel and Casino
Las Vegas, NV
To learn more about the NAPBC, visit www.napbc-breast.org, e-mail email@example.com, or call 312-202-5185.
Council on Certification Announces Updates to 2014 CTR Exam
The National Cancer Registrars Association’s (NCRA's) Council on Certification initiated a Job Analysis study of cancer registry professionals in 2012. The results yielded a set of recommendations that the council will implement beginning with the 2014 exam, including updating the exam content outline and weighting, plus reducing the number of exam questions. The council also plans to conduct research to determine the feasibility of offering additional certifications. To learn more, go to www.ncra-usa.org.
Start Planning Your NCRW 2013 Celebrations
Cancer registrars throughout the world will join their colleagues, fellow medical professionals, and community leaders to observe the 17th annual National Cancer Registrars Week (NCRW), April 8–12, 2013. This year’s theme is Cancer Registrars: Cornerstones of Care. NCRW emphasizes the important role that cancer registrars play in capturing the data that informs cancer research, prevention, and treatment programs. Ideas on how to start planning celebrations can be found at www.ncra-usa.org/ncrw.
More than 40 Sessions Scheduled for NCRA’s Upcoming Annual Conference
NCRA’s 39th Annual Educational Conference is scheduled for May 30–June 2 at the Hilton Union Square in San Francisco, CA. More than 40 plenary and breakout sessions are scheduled, including topics such as: Bridging the Gap between Oncology and Quality Programs; Cancer Registry Professional: The Paradigm Shift; Legislation and Regulations Impacting Healthcare Policy in 2013; Quality Improvement: Maximizing Your Registry’s Potential in the Era of Health Care Reform; and Understanding the Impact of ICD-10-CM/PCS on Cancer Registry. Attendees can earn up to 20 continuing education (CE) credits. Several workshops are also being offered, including Registry Data Analysis and Presentation; Fundamentals of Abstracting; and Central Cancer Registry: Design, Management and Use. Visit www.ncra-usa.org/conference to learn more and register.
Need Help with Data Interpretation and Presentation?
Attend NCRA's Professional Development Webinar Series. The webinars have been designed to improve competency in the areas of data analysis and presentation. Margaret (Peggy) Adamo, RHIT, CTR, will present “Using Your Data: Interpretation and Presentation” on February 27 and Reda J. Wilson, MPH, RHIT, CTR, CDC-NPCR, will lead the webinar “Presenting Data Effectively: Statistical Concepts, Terminology and Methodologies” on March 13. Both webinars are at 2:00 pm ET. Attendees earn one CE for each webinar. Learn more and register at www.ncra-usa.org/education.
Monthly Spotlight: LIVESTRONG Foundation
As was mentioned in the January edition of The CoC Source, the LIVESTRONG Foundation is a strong partner working together with the CoC on a variety of initiatives to support cancer patients and survivors. We are proud to be an advocate member and excited about the work underway to ensure the patient-centered standards are implemented by 2015. These standards represent ideas that are important to us—ensuring that cancer patients receive high-quality coordinated care, which includes supportive services and resources addressing the full continuum of care.LIVESTRONG helps sites implement the continuum of care services with resources available online, on the phone, and in your community.
LIVESTRONG.org provides hundreds of topics and stories that health care professionals can use with their patients or that patients can review on their own. Additionally, LIVESTRONG provides access to its care plan powered by Penn Medicine’s OncoLink, which is a one-of-a kind tool for adult survivors that, based on answers to a brief questionnaire, provides an individualized survivorship care plan to be shared by the patient and the health care team. This year, LIVESTRONG is working with the CoC and other key partners on a research study to test the feasibility of automating the LIVESTRONG Care Plan with the National Cancer Data Base.
Through http://www.LIVESTRONG.org or by contacting 855-220-7777, anybody interested can access free patient navigation services to help people affected by cancer cope with the financial, emotional, and practical challenges that accompany the disease. These patient resources include the LIVESTRONG Care plan.
In communities throughout the country, LIVESTRONG has invested $1.4 million to bring proven cancer support programs, including its presence through the YMCA program. This cancer rehabilitation program helps individuals diagnosed with cancer reduce the side effects of cancer treatment. Learn more at LIVESTRONG.org/ymca, and check back often because programs are being continually added.
Additionally, the foundation partners with health care professional organizations to offer free accredited continuing medical education courses around important issues and cancer treatments.
Recent Publications and/or Products:
The LIVESTRONG Foundation looks at the experiences of the cancer community and develops solutions to help more people in more situations. By leveraging a committed constituency, government and non-government partners in cancer advocacy, and the trusted name recognition built over the past 14 years, the foundation executes research projects that are not always possible in other settings. Its research concerns the most pressing questions in the evolving field of survivorship research, and by the daily responses from people affected by cancer. The research program is unique in that it listens to—and responds to—the voices of people affected by cancer, whether from constituents who follow the foundation online, participate in events and initiatives, or use itsnavigation services.
Some of the foundation’s recent reports:
"I learned to live with it" Is Not Good Enough: Challenges Reported by Post-Treatment Cancer Survivors in the LIVESTRONG Surveys
FULL ONCOLOGY TRACK OFFERED AT 3-IN-1 CONFERENCE
The American Academy of Medical Administrators (AAMA) announced details of its service line conference, scheduled for April 10-12, 2013, at Bally’s Las Vegas. For the first time, three of AAMA’s specialty groups unite to present three days of cross-disciplinary education. The “3-in-1” Conference features educational tracks in oncology, cardiovascular, and neuroscience administration, with over 30 sessions designed for service line leaders and administrators, six half-day seminars, combined keynote sessions, exhibit hall, and networking within and across specialties.
The educational sessions were developed by AAMA’s specialty Colleges, including the American College of Oncology Administrators, which presents an educational track and two half-day pre-conference sessions. Oncology track highlights include Quality Metrics Development for Oncology Patient-Centered Care; Survivorship Care; Oncology and Payers: New Contracting Challenges; Building a Quality Dashboard Across the Cancer Continuum, and much more. The half-day seminars feature The Nuts and Bolts of Developing a Cancer Program and Positioning for Success, a session looking at CoC Accreditation, QOPI and Reimbursement.
Complete Conference details can be found at http://www.aameda.org/Conference/ACCA/ACCAMain.html
or by calling AAMA Headquarters at 847-759-8601.
Cancer Transitions: Moving Beyond Treatment
The 2008 Institute of Medicine (IOM) report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs, concluded that in many cases, the social and emotional needs of cancer survivors are largely unmet. To address the needs of the more than 13 million cancer survivors in the U.S., the Cancer Support Community partnered with the LIVESTRONG Foundation to develop the evidence-based community program, Cancer Transitions®: Moving Beyond Treatment. The six-week program is designed to help cancer survivors make the transition from active treatment to post-treatment care. This program is for survivors of any cancer diagnosis who have completed treatment within the last 24 months. Cancer Transitions (CT) features interactive education, support, exercise, and nutrition activities to address the long-term effects of cancer and its treatment. Through the development of a personal action plan for survivorship, CT provides participants with practical tools and resources to supplement their survivorship care plan. Research shows that both men and women who participate in the program can experience an increased level of physical activity, increased level of physical and social functioning, an improved diet, a decline in health worries, and overall improved feelings about themselves.
CT is available to groups and organizations working with people touched by cancer including community cancer centers, oncology practices, and hospitals. The turnkey package includes everything necessary to conduct this six-week survivorship program. To learn more about this evidence-based program, please e-mail firstname.lastname@example.org or visit www.cancertransitions.org.
Cancer Support Community is one of the largest networks of cancer support worldwide. The organization delivers a comprehensive menu of personalized and essential services, including the following programs:
- Frankly Speaking About Cancer® isthe acclaimed educational series available at no cost to people affected by cancer.
- CancerSupportSource SM is the first validated distress screening program developed for community-based hospitals, physician practices, and advocacy organizations that fully integrates screening, referral, and follow-up care, all through a single Web-based program.
- Cancer Support HelplineSM is a national helpline staffed by licensed mental health professionals prepared to address the needs of any person touched by cancer.
- Cancer Experience RegistrySM is a community of people touched by cancer where the primary focus is on collecting, analyzing, and sharing information about the experience and needs of the patient and family throughout the cancer journey.
News from the National Colorectal Cancer Round Table
The NCCRT will kick-off March Colorectal Cancer Awareness Month in New York City. Inspired by over one million colorectal cancer survivors in the United States, Fight Colorectal Cancer has launched a national awareness campaign called One Million Strong (#1MilStrong) to raise awareness and take action! Anyone with access to a camera phone, Twitter, or Facebook can be an advocate for prevention, treatment and research! Here's how:
- Follow us: http://twitter.com/FightCRC
- Tweet about why you are strong, observations and photos using the hashtag #1MilStrong and tag @FightCRC
Like Us on Facebook: http://www.facebook.com/FightCRC
- Post photos, updates, and videos to our wall.
- We want to see your best muscle shot as your profile picture
- Share, tag , and tweet your photos with @FightCRC and #1MilStrong
- Capture your feats of strength. Record a quick video, upload to your video library and tweet it using #FightCRC. We’ll “Favorite” it on our channel: http://www.youtube.com/FightCRC
- Post our videos on your blog, website or Facebook page.
- End your video with a declaration, “I AM STRONG!”
In addition, NCCRT is asking people to take a pledge to join One Million Strong at www.crcmillionstrong.org. The pledge is a commitment to courageously raise awareness, be an advocate, and to encourage others to join the fight against colorectal cancer. At the NCCRT kick-off event in NYC they will have an IPAD kiosk for people to take the pledge and learn more about colorectal cancer.
On March 1st, in Times Square (43rd and 7th), from 8 AM to 5 PM, activities will include:
- The Prevent Cancer Super Colon (20Ft. inflatable colon).
- Free yoga classes by Lululemon, a pose off with the Global Strong Man Gym and others!
- A photo competition on site and on Facebook (@FightCRC).
- Educational materials about colorectal cancer.
- A dance party and more!
If you are in the NYC area and would like to volunteer or join a yoga class sign up at: http://onemillionstrongkickoff.eventbrite.com/
Joint International Oncology Congress
Building on the success of recent Sentinel Node Oncology Foundation
biennial meetings in San Francisco, CA; New York, NY: and previous
International Sentinel Node Society meetings, for the first time
together, we will convene the most renowned international faculty and
leading experts in the field of oncology and cancer research, advancing
our goal of fostering genuine translational dialogue among the
disciplines responsible for discovering and delivering therapies for
cancer. The Joint International Oncology Congress will focus on updates
in the understanding of cancer metastases, especially sentinel node
biopsy concepts and technology. Studies of biomarkers and their
diagnostic and prognostic applications in cancer progression and
metastatic cancer, as well as their usefulness in radio imaging and
molecular-targeted therapy will be a significant part of the congress.
Sessions will explore recent developments in understanding the cancer
microenvironment, the molecular mechanisms involved in the progression
of cancer cells to metastasis, and immune trafficking and responses to
cancer cells. Participants will discuss results of recent clinical
trials of emerging therapies.
The congress will bring together basic scientists, oncologists,
surgeons, and radiologists from around the world, resulting in a cross
fertilization of ideas that will enhance the translation of basic
science into clinical application—and challenge basic scientists with
clinical issues—thus linking “the bench to the bedside.”
We hope you will join us at the Joint International Oncology Congress
convening the Sentinel Node Oncology Foundation’s 5th International
Symposium on Cancer Metastasis and the Lymphovascular System: Basis for
Rational Therapy and the 8th International Sentinel Node Society
Meeting, Monday, May 27–Wednesday, May 29 in San Francisco.
Please visit our website for more information.