NAACCR Narrative
Winter 2013
NAACCR Reorganization Starts to Take Shape
Message from the President
Message from the Executive Director
Highlights from the Program Manager of Standards
The GIS Handbook of Basic Practices: 10 Years Later
Report of the NAACCR ICD-O-3 Implementation Work Group
The ICD-10-CM Implementation Team Intro to CC Codes
Geographic Information Systems ad hoc Committee to Retire Operations
Discharge and Claims Data Best Practices Guide Project
Thinking Big: The Future of Cancer Surveillance; Introducing the 2013 NAACCR Annual Conference in Austin, Texas
Join Priority Area Networks!
NAACCR 2013 Education and Training Calendar
NAACCR Education and Training Program Update
Lori Havener's 10th Anniversary at NAACCR
Cancer Registries from A-Z - The Manitoba Cancer Registry Report
Dana-Farber Cancer Institute/Brigham and Women's Cancer Center Hosts Massachusetts Cancer Registry Fall Workshop
NAACCR 'Out and About'
Newsletter Tools
Back Issues
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Publication Information
NAACCR Process Improvement Program
Visit the Process Improvement Program webpage for an application and more information.
NAACCR Mentor Fellowship Program
Visit the Mentor Fellowship Program webpage for an application and more information.
NAACCR 2012-2013 Cancer Registry & Surveillance Webinar Series
A subscription to the NAACCR webinar series gives you access to 12, 9 or 6 live webinars carefully designed to meet your training needs. Webinar topics include site-specific coding and abstracting as well as cancer registry operations. A different webinar will be presented each month beginning in October of 2012 and continuing through September of 2013. An application for continuing education hours has been submitted to NCRA. Click here for more information and a link to subscribe.
Narrative Article Reminder
Don't forget to send your NAACCR Narrative articles, pictures, and event information to the Managing Editor, Annette Hurlbut at The upcoming submission deadline for the Spring 2013 issue is April 1, 2013.
NAACCR Reorganization Starts to Take Shape

New steering committees plan to put priorities into action

NAACCR President Maureen MacIntyre and NAACCR Executive Director Betsy Kohler share a light-hearted moment during the recent Board/Steering Committee Chairs meeting in January. The meeting was a pivotal moment in guiding Board members and Chairs through the restructure process and new committee model.

To continue setting the stage for change for the 25-year+ strong organization, NAACCR Board members and Steering Committee Chairs recently gathered around one table to share strategies for action (see photos here).

“With the Strategic Management Plan in place, we are now shifting our focus to putting these member-guided initiatives into play and realigning ourselves to support these activities,” said Maureen MacIntyre, NAACCR president, after the January meeting. “We want to remain a vibrant, fresh organization and use our most important resources – our members – as wisely and effectively as we can.”

NAACCR’s Executive Director Betsy Kohler said the establishment of the new Steering Committee structure provides the perfect opportunity to revitalize and support the work committee members have already achieved.

“NAACCR’s major achievements have been due to the efforts of our volunteer members,” said Kohler. “We are excited about taking advantage of emerging opportunities that will advance cancer surveillance.”

To explain how the new committee structure fits into NAACCR’s new matrix model, Representative-At-Large Board member and Strategic Management Planning Implementation Work Group Chair Nan Stroup guided Board members and Chairs through the restructure process and new committee model.

“Our goal for the committee structure was to strengthen NAACCR’s ability to address the goals and objectives of the Strategic Management Plan,” said Stroup. “The SMP was designed to be a living document with the flexibility to adapt to a changing environment, so we can pursue strategic alliances, enhance communication or initiate new policy as needed.”

The matrix approach differs from the traditional functional system in that it employs a multidisciplinary philosophy to engage people and uses a more fluid and agile structure.

“The traditional structure is task-oriented and people tend to work in silos,” said Stroup. “The matrix structure is project-driven and combines function and product with an emphasis on collaboration and teamwork. NAACCR excels in the area of collaboration and with the new committees forming, I can’t wait to see what our members can accomplish.”

To support the Steering Committees, NAACCR staff will continue to provide a key communication link between the Steering Committees and the NAACCR office.

“We want the Steering Committees to focus on the work that needs to be done and have staff provide the right support in a timely manner,” said Kohler, adding NAACCR staff will manage the day-to-day operations of the Steering Committees, provide professional expertise and help keep everyone on track.

NAACCR has also established Priority Area Networks (PAN) to build communities of practice and increase knowledge transfer.  MacIntyre encourages members to get involved and sign up with one or more of the PANs.

“The PANs will become a fantastic resource for members as well as Steering Committees,” said MacInytre. “These are the members that will be serving on committees, work groups and task forces and providing the expertise we rely on to review our documents, fuel our initiatives and continue providing quality information in the field of cancer registration.”

Steering Committee Chairs and Goals

NAACCR supports five Priority Areas. Each area has a Steering Committee and, in partnership with the Board, the Steering Committee will lead the overall planning, implementation and monitoring of activities related to that area.

The Steering Committees are in the process of forming and members are being appointed. To indicate your interest in a particular priority area, please sign up for a Priority Area Network in the Profile section of your MyNAACCR account. Once you are in the Profile section, simply go to the Edit Account tab and scroll to the bottom to choose one or several Networks.

Strategic Alliances

Major Goal: Strengthen relationships with Sponsoring Member Organizations and existing partners, while establishing new alliances with key organizations to promote the NAACCR mission.

“Over the years NAACCR has been a very effective organization and one of the keys to that success has been the strong productive relationship with our Sponsoring Members Organizations,” said Thomas Tucker, Strategic Alliances Steering Committee Chair, (Kentucky Cancer Registry). “The Steering Committee is eager to build on these relationships and create lasting partnerships that address the issues faced by central cancer registries.”

Standardization and Registry Development

Goal 1: Prepare for the cancer surveillance system of the future – a system that is more timely and adaptable to change.

Goal 2: Provide consensus standards and best practices for the collection and processing of cancer and patient information.

Goal 3: Facilitate sharing of technical resources and tools among NAACCR member organizations.

“Our steering committee covers a wide range of interconnected NAACCR activities,” said Dave Stinchcomb, Standardization & Registry Development Steering Committee Chair, (Westat). “Initial discussions have revealed exciting ways to work across the different disciplines represented by the previous committee structure which will ultimately improve our ability to move things forward quickly and efficiently.”

Research and Data Use

Goal 1: Develop efficient, centralized processes to improve access to North American population-based cancer registry data for cancer linkages, research, and surveillance.

Goal 2: Increase the value and relevance of central cancer registries to the cancer control community, clinicians, researchers and the public.

“We are grateful to have some of the best minds in the organization as part of our Steering Committee, and we are awed by the nearly 100 members who have volunteered for our Priority Area Network. We look forward to helping accelerate the use of NAACCR data both within and beyond the organization,” said Frank Boscoe, (New York State Cancer Registry), who co-chairs the Research and Data Use Steering Committee with Hannah Weir (Centers for Disease Control and Prevention). 

Communications and Policy Development

Goal 1: Serve as the voice for NAACCR members on key issues involving central cancer registries.

Goal 2: Promote the sharing of expertise, knowledge, procedures, and best practices among NAACCR members to ensure efficiency and reduce redundancy of effort.

"NAACCR members are the experts in the field of cancer registration and this combined knowledge gives the organization a truly unique and powerful voice. With our new mandate, Communications is keen on tapping into this expertise more fully and disseminating the news and views of NAACCR members internally and externally," said Roberta Koscielny, Communications Steering Committee Chair, (Manitoba Cancer Registry).

Communications Steering Committee
Brainstorming strategies to enhance communication within the NAACCR membership poolside were Communications Steering Committee members Susan Gershman, Charlie Blackburn, Josh Whitley and Kim Vriends. Chair Roberta Koscielny took the photo!

Professional Development

Goal 1: Partner with other professional organizations to address recruitment and retention issues and delineate NAACCR’s role in the national retention and recruitment effort.

Goal 2: Develop a comprehensive multidisciplinary training program that provides cross-training and leadership skills to ensure that professional personnel in NAACCR member organizations possess the requisite skill sets required to excel in the rapidly changing cancer surveillance environment.

"NAACCR faces two big challenges in the future.  First, many of the NAACCR members we look to for leadership will be retiring. Second, cancer registration is in a state of constant change requiring new skills and knowledge. Professional Development seeks to grow new leaders and bolster current leaders in the NAACCR community and to meet the educational needs of cancer registry personnel to meet the challenges of this ever changing field. We need the NAACCR membership to provide us with feedback on educational needs and to provide that "push" to their colleagues who possess the leadership potential, but need a little help to take that leap," said Deirdre Rogers, Professional Development Steering Committee Chair, (Mississippi Cancer Registry).

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Winter 2013
North American Association of Central Cancer Registries
Working together to make every cancer count.
This newsletter is supported in part by Cooperative Agreement Number 5U58DP001803 from the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention.

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