NAACCR Narrative
Fall 2013
IN THIS ISSUE
Message from the President
Message from the Executive Director
CDC Shares Public Health Articles on CDC Stacks
'Twas the Night Before The Call
Collaborative Staging Announcement as Advised August 23, 2013
CONCORD-2: Global Surveillance of Cancer Survival
Conversations with the Public: the Cancer Prevention Institute of California Reaches Out with Social Media
NAACCR 2013-2014 Education and Training Calendar
Geocoding Guidance for the 2013 Call for Data
Introducing: The EDITS Impact Workgroup
Massachusetts Cancer Registry’s Third Annual Fall Workshop
NAACCR Education and Training Program Update
NAACCR Walkers Celebrate Sixth Fundraising Walk - Another 13.1 Mile Accomplishment!
American Joint Committee on Cancer (AJCC) Launches New Brand Identity
Join the Team - National Data Exchange Agreement
Colorado Cancer Survivorship Program is headed to Atlanta!
It Slices, It Dices, It Makes Custom Data Dictionaries
Cancer Registries from A-Z: The Maryland Cancer Registry
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Publication Information
NAACCR Mentor Fellowship Program
Visit the Mentor Fellowship Program Webpage for more an application and more information.
NAACCR 2013-2014 Cancer Registry & Surveillance Webinar Series
A subscription to the NAACCR webinar series gives you access to 12, 9 or 6 live webinars carefully designed to meet your training needs. Webinar topics include site-specific coding and abstracting as well as cancer registry operations. A different webinar will be presented each month beginning in October of 2013 and continuing through September of 2014. We will apply to NCRA for 3 CE hours for each webinar. Click here for more information and a link to subscribe.
Narrative Article Reminder
Don't forget to send your NAACCR Narrative articles, pictures, and event information to the Managing Editor, Annette Hurlbut at annette.hurlbut@elekta.com. The upcoming submission deadline for the Winter 2013 issue is January 2, 2014.
Message from the President
I happened to read my horoscope the other day and it said: “Listen to news with an open mind.  A new beginning might become possible in the realm of your finances”.  I tried to convince my husband that meant we should buy a boat.  Sadly, he read the horoscope differently.  

However, it did get me thinking about our surveillance community and the collective issues we have been and will continue facing… Decreased funding, ever increasing demands, new technology, new methodology, revised methodology.  The list goes on and on.   How do we continue to maintain our balance and embrace the future?

Personally, I feel we must approach our registry operations like we manage our respective lives/homes.  When there are financial issues at home, we take a hard look at what are the most important things to us and eliminate or reduce the others.  When we want something new in our lives, we look at our finances to determine if we can afford it.  Often, in order to incorporate the new things, we must completely understand and embrace the ramifications.   For instance, if I want a boat, we can only afford to eat three times per week.

I feel operating our registry systems should follow the same basic principles.  We must think carefully about what is important to us and we must always refer back to our ‘research/surveillance question’.  

Population based research provides the surveillance/research community with answers no other source can provide.  However, in order to adapt to the current and immediate future’s financial climate, do we need to rethink our model?  For instance, do we need data from every registry for every variable, for every cancer for every year?  Could we more appropriately answer some important questions using special surveillance/research studies, drawing samples and utilizing sound statistical methodology? Should we divert funding to develop/refine advanced technology which would allow us to automate a larger portion of our operations?  I don’t have the answers to these questions but I do pose them as issues we need to collectively consider.

I am delighted our Sponsoring Members continue working with the NAACCR Board of Directors and through the Steering Committees to help them formulate targeted and specific strategic plans for the immediate and mid-range future in the various areas.  The fact that NAACCR is comprised of members from all population-based registries and standard setting organizations, the collective NAACCR membership is a formidable force in cancer surveillance in North America and can make the sound recommendations regardless of the issues or the economic climate.

We are all in this together and we will all get through this together.

Thank you,

Jill A. MacKinnon, PhD, CTR
NAACCR President

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Fall 2013
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